TED演讲:人类基因研究需要更多样化(1)

As a little Hawaiian, my mom and auntie always told me stories about Kalaupapa 在我还是一个年幼的夏威夷人时,我的母亲和姑姑经常跟我讲关于卡劳帕帕的故事, the Hawaiian leper colony surrounded by the highest sea cliffs in the world 那个地方充满夏威夷的麻风病患者,被世界上最高的悬崖包围。 and Father Damien, the Belgian missionary who gave his life for the Hawaiian community. 还...

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TED演讲:人类基因研究需要更多样化(4)

100 years later in Kalaupapa, we now have the technology to sequence leprosy bacteria in real time, 100百年后的卡劳帕帕,我们已经有能够实实在在研究麻风病病菌基因序列的科技, using mobile genome sequencers, remote access to the Internet and cloud computation. 能够使用可移动的基因序列测定仪,通过网络、远程存取以及云计算。 But only if that's what Hawaiian people want. In ou...

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TED演讲:人类基因研究需要更多样化(2)

Now you don't need a PhD to see that that leaves four percent for the rest of diversity. 你不需要一个博士学位都能发现其他的种族只有4%。 And in my own searching, I've discovered that far less than one percent have actually focused on indigenous communities, like myself. 在我自己的研究里,我发现远不到1%的研究是专注于像我一样的土著居民。 So that begs the question: Who i...

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TED演讲:人类基因研究需要更多样化(3)

Now despite this history of distrust, I still believe that indigenous people can benefit from genetic research. 现在,不管那段充满着怀疑的历史,我依旧相信,土著居民能够从基因研究中获利。 And if we don't do something soon, the gap in health disparities is going to continue to widen. 如果我们不尽快采取行动,医疗健康差距的鸿沟将越来越宽。 Hawaii, for example, has the longes...

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